The Faces of CHD

Sophia Grace was born July 8th, 2010 with Tetralogy of Fallot. Sophia was diagnosed when I was 29 weeks pregnant and was monitored by a cardiologist after birth. On October 10th, 2010 she started having TET Spells and was rushed to the hospital during the next six days we were transfered to 3 different hospitals until we finally ended up at Lucile Packard. The night before her surgery we almost lost Sophia but she fought so hard to stay with us. She had open heart surgery October 16th, 2010 to save her life. Sophia is now a very active 18 month old who loves to play at the park and is crazy about Dora the explorer. She is my heart hero and the greatest gift I could ever receive. I am one proud heart mama!(http://pinterest.com/ruth_h/the-faces-of-chd-congenital-heart-awareness-week-f/)

Catch Up Post

Hey everyone sorry it has been so long since my last post. I am so busy with miss Sophia. She turned eight months old two days ago and is cutting her very first tooth! She is growing up way too fast! Sophia is doing so well! She can say "Hi" "Bye bye" "Ma Ma" "Da Da" and "Nigh Nigh. She can aslo wave. She is such a good natured baby always smiling and laughing. She eats well, sleeps all night and takes two naps a day. God couldn't have blessed me with a better baby. She is the light of my life and I am so happy! We are always on the go out and about and Sophia loves every minute of it, although she is a little shy she loves to interact! She also loves little kids whenever they talk to her she gets so excited. She is such a doll. She has a hilarious personality and she is absolutely head over heels in love with Dora the cartoon! She watches it every morning and we now own just about every DVD. She bounces up and down and squeals when she hears the theme song and she cannot fall asleep at night without her Dora CD. She is just too precious. She is the best thing that has ever happened to me and I couldn't imagine life without her:) Hope all of you are doing well. I will try and post more pictures of Sophia frequently:)

Natalie :)

So much to be thankful for

Since yesterday was Thanksgiving I decided to post a few pictures. Sophia has a check up on Tuesday which should be her last for quite some time and then shots on Thursday :( On the bright side we got to celebrate Thanksgiving and we have so much to be thankful for. Sophia is such a blessing and I love her more than words. Today I was looking at her scar which is almost healed. Even though it is dark in color and runs from right below her neck to under her rib cage,I can't help but think ot is beautiful. I do not ever want her to be embarassed of her scar, I wan't her to always be proud of how strong she is. Her scar is like a little badge of courage and strength. She is truly my hero and I am amazed each and every day by this little girl. When she gets older I am going to share with her the ordeal she went through at such a young age and I am going to tell her that whenever she feels like she cannot do something to just look at her scar and remember what a fighter she is. This girl could accomplish anything and even though she is just four months old I know that for a fact. SO yesterday and today and for the rest of my life I will thank God for this blessing. I will always have something to be thankful for.

My Miracle :)

Sophia has done so well since we have been home. She acts like nothing ever happened. She is such a strong girl. And such a big girl now weighing almost 14 pounds! She is almost four months old and I can't believe how time keeps flying by. She has such a funny personality and quite a temper (like mommy) I love her to pieces! Hope everyone enjoys these photos. In one of them I believe you can see her scar she just loves to lift up her shirt and show it off!

Home at Last :)

Sophia was discharged today at noon and we are so happy to be home! The blood behind her heart staued the same so all of your prayers worked! She is such a fighter I cannot believe how well she did! She is so so sweet it melts my heart. She is a tiny bit fussy because of the pain but Tylenol pretty much clears that up. Over the next couple weeks we have quite a few follow up appointments but after just five weeks she should be completely healed and we will finally be able to take her out and about. I am just hoping that the next five weeks go smoothly and that all of her wounds heal correctly.

In need of Prayers

So Sophia is still doing really well and she is all done with her oxygen now!She has no more tubes or anything and there was talk of discharge tomorrow but then she had an echo done and the results were not that good. Sophia has blood sitting behind her heart it could be from removing her tubes or it could just be from surgery but reguardless the blood is there. This is not uncommon in heart surgery patients. The blood should be gone in a few months but in order for everything to be okay the amount of blood has to stay small if she continues to bleed they will have to go in with a neddle and drain it. So this is where you come in please pray that Sophia does not bleed anymore! Pray that over the next few days the blood does not increase and that we get to go home. Thank you to everyone! natalie_cannon@live.com